Individuals can share data through GenomeConnect, the ClinGen patient registry!

GenomeConnect is an online patient registry where individuals can securely share their genetic and health information. This information can be used by researchers and healthcare providers to better understand the relationship between genetics and health, and to ultimately improve care for future patients. GenomeConnect also gives participants the option to connect with others with similar genetic test results or diagnoses, learn about additional research opportunities, and receive updates about their genetic test results.

GenomeConnect is open to anyone who has had genetic testing or parents/guardians of someone who has had testing regardless of their health history or genetic test results.Participating in GenomeConnect is relatively simple. Learn more about how you can get started or sign-up by visiting the GenomeConnect homepage.

Get Started

Participating in GenomeConnect is relatively simple! Learn more about the steps to particpate.

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Frequently Asked Questions

Review frequently asked questions about GenomeConnect and participation. If you don't see your question listed, contact the GenomeConnect team!

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