Other General Questions
Who is supporting GenomeConnect?
GenomeConnect is a not-for-profit project developed by the Clinical Genome (ClinGen) Resource to engage patients as partners in data sharing efforts. Researchers and clinicians from many different institutions are collaborating as a part of ClinGen, a project designed to create tools and resources that help us understand how genetic changes affect human health. GenomeConnect is built on the PatientCrossroads platform. PatientCrossroads is a subsidiary of Invitae.
Do you have a social media presence?
Yes! GenomeConnect has a Facebook page and also a Twitter handle @GenomeConnect. ClinGen also have a Youtube channel with a GenomeConnect playlist! Follow us, “like” us, re-tweet our tweets, and tell your friends and family about us. The more people who know about GenomeConnect and participate, the more knowledge we will gain about the human genome, and the sooner we will be able to help make desired connections between similar participants, and between genetic researchers and participants.
Does PatientCrossroads, a subsidiary of Invitae store the data “in the cloud”?
The data from GenomeConnect is hosted by AltaVoice (PatientCrossroads) using Amazon Web Services cloud-based services. The data is stored in a cloud database but this database is in private, secure network and is not accessible to those outside of the registry.