Newsletters

Stay up to date with what's new with GenomeConnect by reading our regular newsletters! 

Participating in GenomeConnect is relatively simple. Learn more about how you can get started or sign-up by visiting the GenomeConnect homepage.

  • Summer 2016 Newsletter - Read about participant matching feature, celebrating rare disease day and more!
  • Winter 2016 Newsletter - Read about the participant matching feature, additional research and resources, and what is coming up in 2017!
  • Spring 2017 Newsletter - Read about the updating your account preferences, the importance of uploading your genetic testing report, our new participant advisory committee and more!
  • Summer 2017 Newsletter - Read about data sharing, how to get a copy of your genetics report if you don't have one, and learn more about candidate genes!
  • Fall 2017 Newsletter - Read about the types of genetic changes and genetic test results, family history day, and genetic counselor awareness day. 
  • Winter 2018 Newsletter - Take a look at a timeline of genetic discoveries, read about how important it is to update your account preferences, and read about the difference between the exome and genome. 
  • Spring 2018 Newsletter - Read about data that has been shared through GenomeConnect, how to make sure your information is shared, and about Gregor Mendel the "Father of Genetics". 
  • Fall 2018 Newsletter - Read about how GenomeConnect participants can share their story with us, learn about participation to date, discover how we are working with other groups, review a summary of inheritance patterns, and read about things to consider before downloading data from at-home genetic testing.
  • Winter 2019 Newsletter - Read our participant update, learn more about mitochondria, find out how to update your GenomeConnect Profile, and review how GenomeConnect protects your privacy.
  • Summer 2019 Newsletter - Read our participation update, learn how to update consent when a participant turns 18, meet one of our team members, and learn more about candidate genes. 
  • Fall 2019 Newsletter - Read our participant update, review some genetics FAQs, meet a member of our team, and learn how you can better get in contact with us.
  • Winter 2020 Newsletter - Read our participant update (we have over 2800 participants!), discover more about ClinVar, review what chromosomes are, and learn how you can get involved on Rare Disease Day.
  • Spring 2020 Newsletter - Read our participant update, learn more about diagnosing rare genetic diseases, we have answers to the questions you have been asking, and meet our newest team members!