Patients can partner with ClinGen to share their genetic and health information

When a laboratory finds a genetic change (variant) for the first time, they often know little about it. Even if a genetic variant is well understood, data sharing helps increase understanding of a condition’s features, which may help identify possible interventions and treatments. Sharing genetic test results can:

- Help clinicians, researchers, and other patients by increasing our understanding of your condition and what to expect in the future

- Enable you to receive updates about your genetic test results when there may be new information

- Allow you to make a difference by helping others with the same condition get more definitive results from genetic testing

The more information we collect, the better we will understand how genes affect health and, ultimately, how best to care for patients.