GenomeConnect: The ClinGen Patient Registry
The primary method for patients to share data health and genetic information is through our patient registry, GenomeConnect.
GenomeConnect is a registry used to connect people who are interested in sharing de-identified genetic and health information to improve the understanding of genetics and health. GenomeConnect is a not-for-profit project developed by the Clinical Genome (ClinGen) Resource to engage patients as partners in data sharing efforts. GenomeConnect is hosted by PatientCrossroads, a secure online registry system.
Click here to be taken to the GenomeConnect page to register or login.