Education, Engagement & Counseling
The Education Working Group aims to foster community engagement in all aspects of the ClinGen project through education, outreach, and resource development.
- Create and maintain IRB submission toolkit for laboratories, researchers, and clinicians interested in submitting data to NCBI and other ClinGen resources.
- Create educational resources for the genomics community and the general public describing ClinGen initiatives and other aspects of the data sharing, access, and curation processes.
- Support the continued development of GenomeConnect, ClinGen’s patient-centered registry, in conjunction with the Phenotype Working Group.
- Create online presence through our website, clinicalgenome.org, and various social media outlets, including Twitter and Facebook.
Initiatives & Updates
Leadership & Members
Danielle Azzariti, MS, CGC